I'm sick. I don't mean I've-got-a-cold-and-need-a-good-pot-of-soup sick, but that I've developed a disease that is life-changing. Myasthenia Gravis. It's one of those things you hear about and thank God that 'you're healthy and don't have to deal with' things. I have a severe case affecting peripheral muscles, mainly. I've been battling it for 23 months now and my life will never be the same. Overnight, it seems, I went from being a normal, healthy, rock-climbing, horseback-riding, scuba diving girl to being essentially bedridden and completely incapacitated. It sucks.
I've often wondered why i chose to isolate myself from my friends and deal with this alone instead of leaning on them for support throughout this hellish ordeal...and the best reason I can come up with is pride. I've been so ashamed.
Now, I have the intelligence and knowledge to understand my condition medically, and I know that it's not my fault. I couldn't have prevented it, autoimmune disorders choose victims indiscriminately without rhyme or reason. But being the independent soul that I am, I couldn't stand for people who knew me as healthy to see me crippled and torn down.
I've been coming to terms with all of this and God and I have interesting discussions at times, but I have more good days (emotionally) than bad. However difficult it is to hang on to hope, my faith is strong. Still, I wouldn't be opposed to encouragement, ideas, and support from anyone inclined to offer some. :)
I also plead with you tonight for prayers...I'm having surgery in the morning to remove the thymus gland, and while I have the utmost faith in the capabilities of my surgeon, prayers from friends could only help.
7 comments:
Jess,
Not sure what to say except you'll be in our prayers.
amen to what hugh said. love you.
If only Alabama were closer. Or Texas (depending on view point, I guess). Know that you'll be in our prayers as well, and that you're in our thoughts always.
And you still have to teach me to jump with a horse. Don't forget that.
:)
But of course! <3 u!
Of course you'll be in my prayers and it sure is good to hear from you!
Love you, Rachel
PS. I was just thinking of you last night anyway because I was looking at that book you gave me along with a basket of fun things; and I remembered how good you were to me when I was feeling so sick and low. Thanks again and I hope that the operation went well!
Love you, Jess.
Miss you and Praying for you!
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